Acknowledgements -- In memoriam -- Prologue -- Contents -- Section 1 - Of Biobanks and Databases -- UK DNA Sample Collections for Research -- Estonian Genome Project - Large Scale Health Status Description and DNA Collection -- Surveying the Population Biobankers -- The Israeli DNA and Cell Line Collection: A Human Diversity Repository -- DNA Data Bank of Japan as an Indispensable Public Database -- A Survey of the Variability of DNA Banks Worldwide -- An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries -- Mutation Databases and Ethical Considerations -- Section 2 - Of Populations and Communities -- Community Engagement in Genetic Research: The "Slow Code" of Research Ethics? -- Competing Perspectives on Reasons for Participation and Non-Participation in the North Cumbria Community Genetics Project -- The Engagement of Consumers in Genetics Education: Lessons Learned -- Racial Profiling of DNA Samples : Will it Affect Scientific Knowledge About Human Genetic Variation? -- Problematizing the Notion of "Community" in Research Ethics -- On the Intersection of Privacy, Consent, Commerce and Genetics Research -- A Presumed-Consent Model for Regulating Informed Consent of Genetic Research Involving DNA Banking -- Ethical and Legal Issues in Genetic Biobanking -- Do the Ethical Duties of Donor, and Administrators, Depend on Whether the Database is Public or Private? -- Public Attitudes to Participating in UK Biobank : A DNA Bank, Lifestyle and Morbidity Database on 500,000 Members of the UK Public Aged 45-69 -- Section 3 - Of Commerce, Patents and Benefit-Sharing -- Commercial Biobanks and Genetic Research: Banking Without Checks? -- PXE International : Harnessing Intellectual Property Law for Benefit-Sharing -- Advances in Science and Progress of Humanity: A Global Perspective on DNA Sampling.

Benefit-Sharing in the New Genomic Marketplace: Expanding the Ethical Frame of Reference -- Harmonizing Commercialisation and Gene Patent Policy with Other Social Goals -- Preliminary Data on U.S. DNA Based Patents and Plans for a Survey of Licensing Practices -- Towards a Universal Definition of "Benefit-Sharing" -- Do Patents Encourage or Inhibit Genomics as a Global Public Good? -- Patents and Benefit-Sharing as a Challenge for Corporate Ethics -- Pharmaceutical Patents and Benefit-Sharing: Evolution of Drug Accessibility in Brazil since the 1980's -- Reconciling Social Justice and Economic Opportunism: Regulating the Newfoundland Genome -- Section 4 - Of Information and Discrimination -- Attitudes to Genetic Research and Uses of Genetic Information: Support, Concerns and Genetic Discrimination -- Genetic Information and Insurance: Some Issues -- Discrimination -- "Genetic Discrimination" in an International Context -- Additional Ethical Issues in Genetic Medicine Perceived by the Potential Patients -- Epilogue - Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations -- Why another Statement from the RMGA?.