Cover image for Ethics and Research with Children : A Case-Based Approach.
Ethics and Research with Children : A Case-Based Approach.
Title:
Ethics and Research with Children : A Case-Based Approach.
Author:
Kodish, Eric M.D.
ISBN:
9780198038337
Personal Author:
Physical Description:
1 online resource (376 pages)
Contents:
Contents -- Contributors -- 1 Ethics and Research With Children: An Introduction -- Part I: Research Involving Healthy Children -- 2 Evaluating Benefits and Harms in Research on Healthy Children -- 3 Optimizing Risks and Benefits: The Case of Rotavirus Vaccine -- 4 Bioethics Meets the Barrio: Community-Based Research Involving Children -- 5 Adolescent Research and Parental Permission -- 6 Recruitment of Pregnant, Minor Adolescents and Minor Adolescents at Risk of Pregnancy into Longitudinal, Observational Research: The Case of the National Children's Study -- Part II: Research Involving At-Risk Children -- 7 The Ethics of Newborn Screening Diabetes Research -- 8 Payments for Participation of Children in Research -- 9 Justice, Lead, and Environmental Research Involving Children -- 10 Behavioral Research With Children: The Fenfluramine Challenge -- 11 The Ethics of Predictive Genetic Testing in Prevention Trials Involving Adolescents -- Part III: Research Involving Children With Serious Illness -- 12 Research Ethics and Maternal-Fetal Surgery -- 13 Testing Drugs in Developing Countries: Pediatric Research Ethics in an International Context -- 14 Research and Innovation in Pediatric Surgery: The Problem of Hypoplastic Left-Heart Syndrome -- 15 Near the Boundary of Research: Roles, Responsibilities, and Resource Allocation -- 16 Children and Placebos -- 17 When Eligibility Criteria Clash With Personal Treatment Choice: A Dilemma of Clinical Research -- 18 Involving Children With Life-Shortening Illnesses in Decisions About Participation in Clinical Research: A Proposal for Shuttle Diplomacy and Negotiation -- Index -- A -- B -- C -- D -- E -- F -- G -- H -- I -- J -- K -- L -- M -- N -- O -- P -- Q -- R -- S -- T -- U -- V -- W -- Y -- Z.
Abstract:
In this edited volume, a diverse group of scholars present and discuss challenging cases in the field of pediatric research ethics. After years of debate and controversy, fundamental questions about the morality of pediatric research persist: Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research that involves young children? What should be the role of the older child in decisions about research participation? How do the dynamics of hope and desperation influence decisions about research involving dying children? Should children or their parents be paid for participation in research? What about economic incentives for doctors, researchers and the pharmaceutical industry? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled?.
Local Note:
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2017. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
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