Contents -- Contributors -- Preface -- Acknowledgments -- Foreword -- Chapter 1 Background -- Chapter 2 Access to Health Care -- Chapter 3 Health Care Home: Ensuring Access to a Regular Health Care Provider -- Chapter 4 Family Partnerships in Nursing Care -- Chapter 5 Culturally Responsive Care -- Chapter 6 Enhancement of Family Support Systems -- Chapter 7 Genetic Assessment and Counseling -- Chapter 8 Supporting Emotional Health -- Chapter 9 Providing for Physical Safety -- Chapter 10 Protecting the Right to Privacy and Confidentiality of Information -- Chapter 11 Health Promotion, Maintenance, and Disease Prevention -- Chapter 12 Care for Children and Youth With Disabilities or Special Health Care Needs -- Chapter 13 Palliative Care for Children and Families -- Chapter 14 Health and Behavior Risk Assessment -- Chapter 15 Developmental Transition Care: Children, Youth, and Families Receive Care That Supports Development -- Chapter 16 Translating Research Into Practice -- Chapter 17 Interdisciplinary Models of Care -- Index -- A -- B -- C -- D -- E -- F -- G -- H -- I -- J -- K -- L -- M -- N -- O -- P -- Q -- R -- S -- T -- U -- V -- W -- Y.