Cover -- Contents -- List of Tables -- About the Author -- Foreword -- Acknowledgements -- 1 Introduction -- General Background -- The Scope and Definitions -- 2 Selected Existing Genetic Databases: Distinctive Features, Ethical Problems and the Public Debate -- The Icelandic Health Sector Database -- The UK National Biobank -- The Estonian Gene Bank -- A Genetic Database from Switzerland: The Swiss Pediatric Oncology Group (SPOG) Tumor Bank -- Four Biobanks - Four Situations - Four Ethical and Legal Solutions? -- 3 The Ethical Debate: Principles, Values and Interests - The Ethical Foundations of Guidelines -- Value and Limits of Ethical Principles -- Interest-based Ethical Reflections -- Rules for Balancing Interests and Principles: Proposition of an Ethical Framework for Research Involving Genetic Databases -- 4 Selected Issues of Consensus and of Controversy -- Consent and Withdrawal -- Confidentiality, Access to Data and Assessment of Risks -- Feedback to Study Participants -- Benefit Sharing -- 5 Ethical Issues of Human Genetic Databases and the Future -- Lessons Learned: The Productive Dialogue -- Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics? -- The Future: Old and New Challenges -- References -- Index.