Legal Frameworks for eHealth : Based on the findings of the Second Global Survey on eHealth.
Title:
Legal Frameworks for eHealth : Based on the findings of the Second Global Survey on eHealth.
Author:
Organization, World Health.
ISBN:
9789240688469
Personal Author:
Physical Description:
1 online resource (90 pages)
Series:
Global Observatory for Ehealth Series ; v.5
Global Observatory for Ehealth Series
Contents:
Cover -- Table of Contents -- Executive Summary -- 1. Introduction -- 1.1 Is privacy a culturally dependant concept? -- 1.2 Is respect for privacy important in the uptake of eHealth? -- 1.3 Privacy or confidentiality of EHRs - a note on terminology -- 2. The ethical and legal aspects of privacy in health care: a literature review -- 2.1 Privacy of health related information as an ethical concept -- 2.2 The protection of privacy of health related information through law -- 2.3 Binding international law on privacy of health related information -- The Universal Declaration of Human Rights -- The European Convention on Human Rights -- European Union Directive on the protection of individuals with regard to the processing of personal data and on the free movement of such data -- 2.4 International non-binding agreements -- Convention for the Protection of Individuals with regard to Automatic Processing of Personal Data -- Council of Europe Recommendation No. R (97) 5 on the protection of medical data -- WHO: A Declaration on the Promotion of Patients' Rights in Europe -- 2.5 National law on privacy of health related information -- Use of EHRs in Brazil -- Legislative responses to EHRs in the USA -- 3. Analysis of survey results -- 3.1. General privacy legislation -- Results -- Discussion -- 3.2 EHR privacy legislation -- Results -- Discussion -- 3.3 Legislation to regulate the sharing of health related data for patient care -- Results -- Discussion -- 3.4 Legislation on patient access and the control of EHRs -- Results -- Discussion -- 3.5 EHRs for research -- Results -- Discussion -- 4. Conclusions -- 4.1 Building trust -- 4.2 Making data work: expanding the uses of EHRs -- 5. References -- 6. Appendix 1. Methodology of the second global survey on eHealth -- Purpose -- Survey implementation -- Survey instrument -- Survey development -- Data Collector.
Preparation to launch the survey -- Survey -- Limitations -- Data processing -- Response rate -- Response rate by WHO region -- Response rate by World Bank income group -- References.
Abstract:
Given that privacy of the doctor-patient relationship is at the heart of good health care and that theelectronic health record (EHR) is at the heart of good eHealth practice the question arises: Is privacylegislation at the heart of the EHR? The second global survey on eHealth conducted by the GlobalObservatory for eHealth (GOe) set out to answer that question by investigating the extent to which thelegal frameworks in the Member States of the World Health Organization (WHO) address the need toprotect patient privacy in EHRs as health care systems move towards leveraging the power of EHRs todeliver safer more efficient and more accessible health care. The survey began with a question on the existence of generic privacy legislation followed by questionsto establish if specific rules had been adopted to address privacy in EHRs. A series of questions followedpertaining to the way in which privacy is addressed in transmittable EHRs and patients rights to access correct and control the use of the EHR. The investigation ended by broaching the issue of privacyprotection in secondary uses of data contained in EHRs such as for international research purposes. In the present report the analysis of the survey responses is preceded by an overview of the ethical andlegal roots of privacy protection. Focusing on the ethical concepts of autonomy beneficence and justice the report reminds the reader of the early recognition of the duty of privacy in the Hippocratic Oath andgoes on to consider how that is reflected in international binding legislation such as the United NationsDeclaration on Human Rights and the European Union Data Protection Directive as well as non-bindinginternational codes of practice. The ability to make wide use of EHRs and other eHealth tools will become increasingly important in bothdeveloped and developing countries. In the former EHRs
and related eHealth tools will play a key roleof providing health care to ageing populations in which social care and health care need to be muchmore closely connected and where capacity demands will require that care is delivered outside traditionalsettings such as hospitals. The protection of privacy will also be a significant issue in supporting thechanging nature of health care in developing countries in which mobile eHealth solutions are emergingas an integral part of the health care infrastructure as demonstrated in the publication mHealth: newhorizons for health through mobile technologies.
Local Note:
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2017. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
Genre:
Electronic Access:
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