Cover -- Half-title -- Title -- Copyright -- Dedication -- CONTENTS -- PREFACE -- TABLE OF CASES -- Australia -- Canada -- European Court and Commission on Human Rights -- European Court of Justice -- European Patent Office -- Germany -- United Kingdom -- United States -- TABLE OF LEGISLATION -- Australia -- Canada -- Denmark -- Estonia -- European Union -- Germany -- Iceland -- Ireland -- Israel -- Netherlands -- United Kingdom -- United States -- INTERNATIONAL INSTRUMENTS -- MISCELLANEOUS DOCUMENTS -- Denmark -- European Union -- France -- Sweden -- United Kingdom -- United States -- Other -- 1 Health care, patient rights and privacy -- Privacy as a problem -- Establishing parameters -- Privacy: a definition -- Why protect privacy? -- Private interests -- Public interests -- Privacy in context: the health care setting -- Health promotion and the cult of the body -- Body, self and privacy -- Threats to patient privacy in the health care setting -- Privacy, state interest and health care provision -- Notifiable diseases -- Current threats to patient privacy -- Advances in medical technology and the threat to patient informational and spatial privacy -- Genetic privacy -- Privacy: a role for the law? -- 2 Privacy: anti-social concept or fundamental right? -- The public/private distinction -- The value of the public/private distinction -- Feminist views of the public/private distinction -- Privacy: anti-social concept or fundamental right? -- Examining privacy from its fundamentals -- The sceptical approach -- The fundamentalist approach -- The search for a definition of privacy -- A core concern for privacy: personal information or beyond? -- Spatial and informational privacy: medico-legal definition -- Two concepts, not one? -- Privacy as a solid state of affairs -- Privacy and related concepts.

The United States' constitutional right of privacy -- Bowers v. Hardwick -- Judicial knot-tying -- Conflation of concepts -- Conclusion -- 3 Human genetics and genetic privacy -- Good ethics and good law -- The Human Genome Project -- Human genetics and genetic disease -- The uniqueness of genetic information -- Concrete and abstract genetic knowledge -- The perceived utility of genetic information -- Genetic information and testing -- What is genetic information? -- Lessons we cannot (currently) learn from genetic information -- The interested parties -- The individual -- Family members -- The French glaucoma studies -- Familial issues and interest in genetic information -- The individual-an interest in the genetic information resulting from a test -- The individual-an interest in keeping information in a state of non-access -- Family members-knowledge and security of genetic information -- The individual and the family-an interest in not knowing? -- Insurers and employers -- Insurance -- The interests of the insurance industry -- Individual an familial privacy interests -- Discrimination -- Further public interests -- Assessing insurance interests in genetic information -- Employment -- Financial interest -- Protecting third party interests -- Protecting the employee and the prospective employee -- Discrimination -- Evaluating employment interests in genetic information -- Researchers -- The state -- Health care and social interests -- Protection of public health -- Enhanced patient choice -- Use of genetic information in the criminal justice system -- DNA fingerprinting -- Legal obligations of disclosure to prevent or detect crime -- Genetic determinism an crime -- Financial interests -- Testing to establish paternity -- Testing to prevent social benefit fraud -- The state as employer -- Summarising state interests -- Future persons.

Interests in genetic information: a conclusion -- 4 Autonomy, confidentiality and privacy -- Challenging medico-legal paradigms -- Autonomy -- The principle of autonomy in contemporary medical law and ethics -- Autonomy in law -- Paternalism -- Facilitating choices -- Autonomy and genetic information -- The myth of consent as an ethical panacea -- Autonomy and the right not to know -- Confidentiality -- Conceptual underpinnings of confidentiality -- Confidentiality in health care -- Confidentiality and the law -- Confidentiality and genetic information -- The parameters of public interest -- Confidentiality and informational privacy interests -- The role of consent in justifying uses of confidential information -- Confidentiality and spatial privacy interests -- Further limits of the law of confidence -- The protection of privacy interests by autonomy and confidentiality -- 5 Privacy and the public interest -- Contemporary privacy protection -- Confidentiality and privacy -- Privacy and human rights -- Disentangling privacy and confidentiality -- Data protection as a means of safeguarding informational privacy -- Informational and spatial privacy -- Building a case for privacy using the example of genetics -- Genetic privacy -- Striking the correct balance -- The availability of a therapy or cure -- The severity of the condition and likelihood of onset -- The nature of genetic disease -- The nature of genetic testing -- The nature of the information to be disclosed -- The nature of the request -- The views and likely reaction of the disclosee -- A right not to know -- What kind of genetic privacy right should there be? -- No duty to inform -- A duty not to inform -- The Genetic Privacy Act -- Privacy and the public interest -- The family as community in microcosm -- Community consent -- Communitarianism and social paternalism.

Legal policy and political will -- Public and private interests in research -- Research and anonymity -- Tension and trust -- 6 Privacy and property? -- Privacy, property and the personality -- Information as property -- Intellectual property and genetic material -- Crisis of confidence -- Further limits on autonomy and consent -- Consents as disempowerment -- Revisiting the gift model -- A property paradigm -- Current movements towards a property model -- Indigenous peoples -- Community solidarity -- Defending a property model -- Conclusion -- INDEX.