Cover image for Living with Learning Disabilities, Dying with Cancer : Thirteen Personal Stories.
Living with Learning Disabilities, Dying with Cancer : Thirteen Personal Stories.
Title:
Living with Learning Disabilities, Dying with Cancer : Thirteen Personal Stories.
Author:
Tuffrey-Wijne, Irene.
ISBN:
9780857002006
Personal Author:
Physical Description:
1 online resource (274 pages)
Contents:
FRONT COVER -- Living with Learning Disabilities, Dying with Cancer: Thirteen Personal Stories -- Contents -- ACKNOWLEDGEMENTS -- Foreword by Professor Sheila Hollins -- PREFACE -- Chapter 1: Three Stories -- John Davies -- Vincent Sweeney -- Nick Ballard -- Chapter 2: Diagnosis and Treatment -- Lily Lamb -- The cancer diagnosis -- Cancer treatments -- Summary -- Chapter 3: Truth-telling and Understanding -- Lily Lamb's understanding of cancer -- Were people told the truth? -- Understanding cancer and dying -- Sally Burnett: 'Don't tell her' -- Breaking bad news -- Summary -- Chapter 4: Family and Friends -- Lily Lamb and her family -- The importance of families -- Pete Carpenter and his sister Daphne -- Friends -- Summary -- Chapter 5: Unprepared Services, Inexperienced Carers -- Lily Lamb and her carers -- Pete Carpenter and his carers -- Services were not prepared for death -- The emotional impact of caring -- Health care professionals -- Summary -- Chapter 6: Dependent Lives -- The story of Lily Lamb's life -- Deprivation and dependence -- Forced jollity -- The importance of listening -- Summary -- Chapter 7: Resilience -- Richard Horwood: 'Don't ever give up' -- The features of resilience -- Summary -- Chapter 8: Dying and Beyond -- Lily Lamb's death -- Dying -- Funerals -- Grieving and remembering -- Summary -- Chapter 9: Learning Lessons -- What did people want and need? -- Conclusion -- APPENDIX 1: THE PEOPLE IN THIS BOOK -- APPENDIX 2: METHODS -- ENDNOTES -- RESOURCES -- REFERENCES -- INDEX.
Abstract:
This book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers.
Local Note:
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2017. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
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